Home > Resources > GIC SLCI Signature Event Long Covid: Research, Policy and Economic Impact — Session IV and Conclusion

GIC SLCI Signature Event Long Covid: Research, Policy and Economic Impact — Session IV and Conclusion

VIDEO May 20, 2022

Speaker / Author

Susan M. Levine, M.D.

ME/CFS and Long COVID specialist, former chair of the CFS Federal Advisory Committee

Susan M. Levine, M.D., graduated from Albert Einstein School of Medicine in 1981 and completed a residency in Internal Medicine at Montefiore Hospital in the Bronx followed by two fellowships in Infectious Diseases and Allergy and Immunology at Memorial Sloan Kettering Cancer Center and Mt. Sinai Hospital, respectively. 

During her second fellowship while working with Dr. Charlotte Cunningham-Rundles, one of the co-authors of the original case definition of CFS/ME, ... Read More

Lauren Nichols

Vice President of Body Politic

Lauren Nichols is the Vice President of Body Politic, a patient-led health justice organization at the forefront of the Long COVID movement, the home of the first COVID-19 Support Group, and the first entity to research Long COVID. Body Politic and its research organization, the Patient-Led Research Collaborative, are recognized leaders in helping global governments, public health agencies, medical organizations and the public to recognize, research and support the millions of Long COVID patients globally. Body Politic has supported White House and NIH initiatives that ultimately led to Congressional funding for Long COVID research and innovation and the inclusion of Long COVID ... Read More

Elle Seibert

Registry Data Manager of You + ME Registry at Solve M.E.

Elle Seibert is the Registry Data Manager at the You + ME Registry, an online clinical study of ME/CFS, Long COVID + other post-viral illnesses. Since joining Solve M.E., Elle has cultivated relationships with key stakeholders in the ME/CFS and Long-COVID space, with the understanding that thoughtful community engagement yields better research. By maintaining a presence in these communities, Elle has come to recognize post-viral illness as a social-scientific issue, rather than a purely medical phenomenon. Although it took some time, Elle also came to recognize that she, too, is a longhauler. Prior to joining Solve M.E., Elle has worked with ... Read More

Emily Taylor

Vice President of Advocacy and Engagement, Solve M.E.

Emily Taylor is the Vice President of Advocacy and Engagement for Solve M.E. She brings to the organization over fifteen years of policy, organization, and advocacy experience in both the non-profit and government sectors. With five years’ experience on Capitol Hill, Emily contributes a keen understanding of both state and federal policy processes while cultivating strong grassroots organization and patient representation. Prior to joining the Solve M.E., Emily served as the director of policy and advocacy for an award-winning autism organization. There she spearheaded major overhauls in disability, early intervention, and education policies. She is also a veteran of several successful ... Read More