Megan Carmilani

Founder, Long Covid Families

Megan Carmilani is a disability advocate with decades of experience fighting for awareness and healthcare for the disabled. Diagnosed with a post-viral syndrome as a child, her lived experience as a disabled teen, adult, and parent is what drives her work. She created Long Covid Families to give children and caregivers support and guidance, with a focus on self-determination, empowerment, and equity. She incorporates the acquired skillset of living with ME, POTs, MCAS, Fibromyalgia, and other chronic conditions into her work, her parenting and her advocacy, Megan has her MEd in Curriculum and Instruction, is a former reading specialist, and a mom to Anna and partner to Andrew.